Chicago - 12:00 PM - 12:45 PM
Debjani Mukherjee, PhD
Physical Medicine and Rehabilitation, and
Medical Humanities and Bioethics
Northwestern University Feinberg School of Medicine
Disability, Ableism and Emotion
“Around the world, persons with disabilities face physical, social, economic and attitudinal barriers that exclude them from participating fully and effectively as equal members of society.” –United Nations Website
In healthcare settings as well, people with disabilities often experience marginalization and report being disrespected and devalued. In this presentation, a clinical ethicist and psychologist who has been working with people with disabilities for over 20 years will use critical disability studies and social psychology theory to examine clinical ethics practice. She will describe some of the tensions and difficulties with being “heard” as a person with a disability in the healthcare system and primarily focus on attitudinal barriers to inclusion, including ableism and emotion. She will also examine clinical ethics concepts such as substituted judgment and best interest in the context of disability. Finally, she will consider how clinical ethicists can facilitate equal treatment of people with disabilities, when they may share the biases that are in the dominant culture.