Northwestern University Feinberg School of Medicine
Center for Bioethics and Medical Humanities

Recent Publications

Al-Smadi AM, Tawalbeh LI, Gammoh OS, Ashour AF, Tayfur M, Attarian H. The prevalence and the predictors of insomnia among refugees. J Health Psychol. 2017 Jan. DOI: 10.1177/1359105316687631.

Gammoh OS, Al-Smadi AM, Mukattash TL, Al-Katib W, Attarian H, Al-Shawagfeh M. Efficacy of single dose antihistamine vs. single dose valerian-hops in subjective sleep measures among war refugees: a comparison trial. Arch Clin Psychiatry. 2017;44(2):35-9

Al-Smadi AM, Tawalbeh LI, Gammoh OS, Shawagfeh MQ, Zalloum W, Ashour AF, Attarian H. The effect of Ginkgo biloba and psycho-education on stress, anxiety and fatigue among refugees. Proceedings of Singapore Healthcare. 2017.

Lundholm MD, Rooney M, Maas MB, Attarian H, Prabhakaran S. Wake-Up Stroke Is Associated With Greater Nocturnal Mean Arterial Pressure Variability. Stroke. 2017;48(6):1668-1670.

Belling C. The President’s Glands: Biography and Biology in American Adulterer. Reprinted in Biofictional Histories, Mutations, and Forms. Edited by Michael Lackey. New York: Routledge, 2017.

Belling C. Arts, Sciences, Humanities: Triangulating the Two Cultures. Journal of Literature and Science 10.2 (2017): 19-25 DOI: 10.12929/jls.10.2.03

Brisson GE. Body Shop. Fam Med. 2018;50(5):390-391. https://doi.org/10.22454/FamMed.2018.311118.

Brisson GE, Barnard C, Tyler PD, Liebovitz DM, Neely KJ. A Framework for Tracking Former Patients in the Electronic Health Record Using an Educational Registry. J. Gen. Intern. Med. Apr 2018;33(4):563-566.

Brisson GE, Neely KJ, Tyler PD, Barnard C. Should Medical Students Track Former Patients in the Electronic Health Record? An Emerging Ethical Conflict. Acad. Med. Aug 2015;90(8):1020-1024.

Johnson, E.K., Rosoklija, I., Shurba, A., D’Oro, A., Gordon, E.J., Chen, D., Finlayson, C., Holl, J.L. (In Press). Future fertility for individuals with differences of sex development: Parent attitudes and perspectives about decision-making. Journal of Pediatric Urology, 2017 July 3. DOI: http://dx.doi.org/10.1016/j.jpurol.2017.06.002.

Campo-Engelstein, L, Chen, D., Baratz, A., Johnson, E.K., & Finlayson, F. (2017). Ethical considerations of fertility preservation for youth with differences (disorders) or sex development (DSD). Journal of the Endocrine Society, 1(6): 638-645. DOI: https://doi.org/10.1210/js.2017-00110

Johnson, E. K., Rosoklija, I., Finlayson, C., Chen, D., Yerkes, E. B., Madonna, B. M., Holl, J. L., Baratz, A. B., Davis, G., & Cheng, E. Y. (2017). Attitudes toward “Disorders of sex development” nomenclature among affected individuals. Journal of Pediatric Urology, 2017 May 8.pii: S1477-5131(17)30183-3. DOI:10.1016/j.jpurol.2017.03.035.

Chen, D., Simons, L, Johnson, E.K., Lockart, B.A. & Finlayson, C. (2017). Fertility preservation for transgender adolescents. Journal of Adolescent Health, 2017 Mar 28. pii: S1054-139X(17)30065-4. DOI: 10.1016/j.adohealth.2017.01.022.

Campo-Engelstein, L., & Chen, D. (2017). Ethical issues in pediatric and adolescent fertility preservation, Chapter 18 (pp. 259-267). In T.K. Woodruff & Y.C. Gosiengfiao (Eds.) Pediatric and Adolescent Oncofertility: Best Practices and Emerging Technologies. New York, NY: Springer.

Czerwiec, MK. Taking Turns: Stories from HIV/AIDS Unit 371, Penn State University Press. 2017.

Levine S, O'Mahony S, Baron A, Ansari A, Deamant C, Frader J, et al. Training the workforce: description of a longitudinal interdisciplinary education and mentoring program in palliative care. J Pain Symptom Manage. 2017;53 (4): 728-737.

Johnson L-M, Frader J, Wolfe J, Baker JN, Anghelescu DL, Lantos JD. Palliative sedation with propofol for an adolescent with a DNR order. Pediatrics. DOI: https:// doi. org/ 10. 1542/ peds. 2017- 0487

Frader J, Henner N, Fry J, eds. Palliative Care in the Perinatal Period. Volume 41, Issue #3 of Seminars in Perinatology. 2017;41(2--March):93-139.

Henderson ML, Clayville KA, Fisher JS, Kuntz KK, Mysel H, Purnell TS, Schaffer RL, Sherman LA, Willock EP, Gordon EJ. Social Media and Organ Donation: Ethically Navigating the Next Frontier. American Journal of Transplantation 2017.

Hochsmann C, Meister S, Gehrig D, Gordon EJ, Li Y, Nussbaumer M, Rossmeissl A, Schafer J, Hanssen H, Schmidt-Trucksass. Effect of E-Bike vs. Bike Commuting on Cardiorespiratory Fitness in Overweight Adults: A Four-Week Randomized Pilot Study. Clinical Journal of Sport Medicine 2017.

Thiessen C, Kulkarni S, Reese P, Gordon EJ. Opting out: A single-center pilot study assessing the reasons for and the psychosocial impact of withdrawing from living kidney donor evaluation. Journal of Medical Ethics 2017;Mar.

Gander JC, Gordon EJ, Patzer RE. Decision aids to increase living donor kidney transplantation. Current Transplant Reports 2017;4:1-12.

Gordon EJ. Culturally competent strategies for increasing knowledge of live kidney donation in the Hispanic community. Current Transplant Reports 2017.

Keller, EJ, Kulik, L, Stankovic, Z, Lewandowski, RJ, Salem, R, Carr, JC, Schnell, S, Markl, M, and Collins, JD. “4D MRI-based Splenic Flow Index for Predicting Cirrhosis-associated Hypersplenism.” AJR. 209.1 (2017): 46-54.

Keller, EJ, McGee, K, Resnick, SA, Trerotola, SO, Valji, K, Johnson, MS, Collins, JD, and Vogelzang, RL. “Who We Are and What We Can Become: an Analysis of Professional Identity Formation in Interventional Radiology.” JVIR. 28.6 (2017): 850-856.

Keller, EJ, Fang, S, Lin, K, Freed, BH, Smith, PM, Allen, BD, Spottiswoode, BS, Davids, R, Carr, M, Jolly, MPJ, Markl, M, Carr, JC, and Collins, JD. “The Consistency and Efficiency of Myocardial Strain Derived from Heart Deformation Analysis.” Int J Cardiovascular Imaging. Online Feb. 2017.

Mittelman M, Thiessen C, Chon WJ, Cronin DC, Klayville C, Fisher JS, Fry-Revere S, Gross J, Hanneman J, Henderson M, Ladin K, Mysel H, Sherman L, Willock L, Gordon EJ*. Miscommunicating NOTA can be Costly to Living Donors. Letter. American Journal of Transplantation 2017;Feb;17(2):578-580.

Mustanski, B., Macapagal, K., Thomann, M., Feinstein, B. A., Newcomb, M. E., Motley, D., & Fisher, C. B. Parents’ perspectives about adolescent boys’ involvement in biomedical HIV prevention research. Archives of Sexual Behavior.

Rossman, K., Salamanca, P., & Macapagal, K. (2017). A qualitative study examining young adults’ experiences of disclosure and non-disclosure of LGBTQ identity to healthcare providers. Journal of Homosexuality. doi: 10.180/00918369.2017.1321379

Fisher, C.B., Fried, A.L., Desmond, M., Macapagal, K., & Mustanski, B. (2017). Facilitators and barriers to participation in PrEP HIV prevention trials involving adolescent and emerging adult transgender men and women. AIDS Education and Prevention, 29, 205-217. doi:10.1521/aeap.2017.29.3.205

Mustanski, B., Coventry, R., Macapagal, K., Arbeit, M. R., & Fisher, C. B. (2017). Sexual and gender minority adolescents' views on HIV research participation and parental permission: A mixed methods study. Online ahead of print, Perspectives on Sexual and Reproductive Health. doi:10.1363/psrh.12027

Macapagal, K., Coventry, R., Arbeit, M. R., Fisher, C. B., & Mustanski, B. (2017). “I won’t out myself just to do a survey”: Sexual and gender minority adolescents’ perspectives on the risks and benefits of sex research. Online ahead of print, Archives of Sexual Behavior, 46. DOI 10.1007/s10508-016-0784-5

Michelson KN, Frader J, Sorce L, Clayman ML, Persell SD, Fragen P, Ciolino JD, Campbell LC, Arenson M, Aniciete DY, Brown ML, Ali FN, White D. for The Navigate Study Investigators. The process and impact of stakeholder engagement in developing a pediatric intensive care unit communication and decision-making intervention. Journal of Patient Experience. 2016;3(4): 108–118. DOI: 10.1177/2374373516685950

Michelson K, Clayman ML, Ryan C, Emanuel L, Frader J. Communication during pediatric intensive care unit family conferences: a pilot study of content, communication and parent perceptions. Health Communication. 2017;32(10);1225-1232. PMID: 27612506

Green MM, Wicclair MR, Wocial LD, Kondrat A, Mukherjee D. Moral Distress in Rehabilitation. PM R. 2017 Jul;9(7):720-726

Gittler M, Thomas JL, Bozza MN, Berlinger N, Mukherjee D. Undocumented Patients and Rehabilitation Services. PM R. 2017 Apr;9(4):403-410

Fichtenbaum J, Kirshblum S, Ruppert L, Flaum T, Spill GR, Mukherjee D. Prognosis Disclosure in Spinal Cord Injury. PM R. 2017 Jan;9(1):76-82

Moro, T.T., Savage, T.A., & Gehlert, S. (2017). Agency, social and healthcare supports for adults with intellectual disability at end of life in out-of-home non-institutional community residences in Western nations: A literature review. Journal of Applied Research in Intellectual Disability, 00, 1-12. doi: 10.1111/jar.12374

Colaneri N; Sheldon M; Adesman A. Pharmacological cognitive enhancement in pediatrics. Current Opinion in Pediatrics. 2018 March 13. doi: 10.1097/MOP.0000000000000615

S. C. Sanderson, K. B. Brothers, N. D. Mercaldo, E. Wright Clayton, A. H. M. Antommaria, S. A. Aufox, M. H. Brilliant, D. Campos, D. S. Carrell, J. Connolly, P. Conway, S. M. Fullerton, N. A. Garrison, C. R. Horowitz, G. P. Jarvik, D. Kaufman, T. E. Kitchner, R. Li, E. J. Ludman, C. McCarty, J. McCormick, V. McManus, M. F. Myers, A. Scrol, J. Williams, M. J. Shrubsole, J. S. Schildcrout, M. E. Smith, I. A. Holm.. Patients’ views on consent and data sharing in biobank research: A large multi-site experimental survey in the US. The American Journal of Human Genetics. 2017 March 2; 100(3): 414 – 427.

Hylind R, Smith M, Rasmussen-Torvik LJ, Aufox S. Great Expectations: Patient Perspectives and Anticipated Utility of Non-Diagnostic Genomic Sequencing Results. J Community Genet. 2017 Jun 27.

Rohrer Vitek CR, Abul-Husn NS, Connolly JJ, Hartzler AL, Kitchner T, Peterson JF, Rasmussen LV, Smith ME, Stallings S, Williams MS, Wolf WA, Prows CA. Healthcare Provider Education to Support Integration of Pharmacogenomics in Practice: The eMERGE Network Experience. Pharmacogenomics. 2017 Jul; 18(10): 1013-1025.

Watson K, Fu B. Medical Improv: A Novel Approach to Teaching Communication and Professionalism Skills. Ann Intern Med. doi:10.7326/M15-2239